The Next Step

At this very moment, Renn is in the middle of a large, rapid seizure. With eyes fixated on mine, he's firing off a dozen questions about every twenty-five seconds, and is jerking with both arms, shoulders, and head. We call this his "restart".

Have you ever seen cartoon robots going along on whatever show you're watching, and how sometimes they'll get wet, or misfire electronically, and kind of zip around really fast, stop, and start over as nothing had ever happened? (Fyi- I searched for clips of what I'm talking about, to give you an example, but apparently I'm crazy, and they don't exist!) That's what Renn is like. With each jerking movement, he "starts over" and has new questions, new ideas, and new conversations. It's heartbreaking.

So, I just heard from his doctor...

Let's call her Dr. Amazing, shall we?

Dr. Amazing let me know that she thinks that the Video EEG Renn had in July, may not have gotten good enough seizures that can help us determine what is going on on the inside of his beautiful skull (and to be honest, I COMPLETELY agree!). So, she said, "What I'd like to do is go ahead and get another one, that way we can be sure what we're looking at. He'll need to stay as long as it takes to get several bad ones. We might even take him off Lamictal, all together, to get them."

So, January 7th, it is. Renn will be admitted to UCSF, and will endure another Video EEG, and probably a few more tests, including the MEG, and PET Scan. He will be missing quite a bit of school... And since he's already behind, we are a bit concerned.

But, God knows... And God is making things happen.  And we have Christmas all to ourselves, with our little Jedi. That alone, is one giant answer to prayer.

 

*****

 

Psalm 86: 1-7

Hear me, Lord, and answer me,
for I am poor and needy.
² Guard my life, for I am faithful to you;
save your servant who trusts in you.
You are my God; ³ have mercy on me, Lord,
for I call to you all day long.
⁴ Bring joy to your servant, Lord,
for I put my trust in you.

⁵ You, Lord, are forgiving and good,
abounding in love to all who call to you.
⁶ Hear my prayer, Lord;
listen to my cry for mercy.
⁷ When I am in distress, I call to you,
because you answer me.