Sunday, November 15, 2015

Dear Epilepsy

Dear Epilepsy,

I'm writing to you because you won't answer or return my calls, and you clearly won't open the door when I pound on it at 2am. I think you know why I'm trying to get a hold of you, and I think you're ignoring me on purpose.

Listen, Epilepsy...things have to change.  You have this knack for causing too much pain, fear, and anguish. There are too many men, women, and children all around this planet who deal with your garbage every single day, so it has to stop. Aren't you tired of people fighting you? Doesn't it irk you to know how many thousands of people HATE you? Maybe you enjoy the power you feel you hold over all of us, but I can promise you that reign of power is coming to an end.

For me, personally, I stayed awake all night last night, staring at the ceiling, coming up with new ways on how to defeat you. The grip you had around my son took a heavy blow, nearly 20 months ago. We were never quick to call his sudden success a full-blown victory (we're optimists, not idiots). We've always kept our eye on you. But last night, you decided to cause panic in my son. He did something he's never been able to do, though: he knew you were coming. Normally, I'd say that's a huge win over your devious ways. But, you see, you also caused him to fear... for his mother's sake.

"Renn, are you okay?"

"I'm fine, Mom." he said, looking in the complete opposite direction.

"No, really, what's going on? Why are you hiding from me?"

"Because I don't want you to be sad. And I don't want to go back to the hospital..."

You caused his seizures to officially return, Epilepsy. But what's worse? You caused him to carry the burden of worrying about how I would react. How DARE you.

I think you are deplorable. I think you are evil, you are unfair, you are nothing but the filth that clouds my faith in the darkest of times. My God is bigger than you. And after I'm done with this letter, I will remember that again.

You see, Epilepsy, our kids are stronger than you. You may never release your hold over them, but you will NOT TRIUMPH over them, or the way they've touched our lives. Sure, a few of our loved ones may have succumbed to the torment you riddled their bodies with, but that did not stop them from showing the world what their strength could do. Their bravery, even to the very end, only served as a beacon of hope for the rest of us who will not give up this fight.

We fight for them. We fight for all of them.

So, Epilepsy, I can say with utmost certainty that it's time we all break up with you. And believe me, it's not us, it's you. No, there's no cure against you...yet. Yes, there are thousands of people all over the place who believe the rumors about how surgeries are the total answer to the end of you and what you do, or that CBD oil is a one-size-fits-all solution. But, for every 1 in 26 who battles you every day? They know your game. And it's over.

Leave my son in peace. He's been through enough already. The seizure last night and the one this morning will not deter us from celebrating the days he doesn't have one. You may be trying to trick us by making them look different. We see your evilness attempting to break his beautiful spirit. But I assure you, your attempts will be made in vain. He is a Jedi... and he will not allow you to defeat him.

Leave our children, husbands, wives, fathers, mothers, brothers, sisters, grandfathers, grandmothers, uncles, aunts, cousins, neighbors, teachers, soldiers, EVERYONE alone.

This is it, Epilepsy. We're done. We're ALL done. Go back to wherever it was you came from and live a sad and completely lonely life.

Sincerely,

Jedi Renn's mom, father, and brother

And the Mothers of Natalie, Melanie, Kirsten, Aja, Kate, Collin, Eli, Noah, Kayla, Claire, Brian, Christopher, Amelia, Matt, Aiden, Skylar, and Alexis


***************** UPDATE ***********************

It turns out, that Renn was experiencing extreme dehydration, and did NOT actually have two seizures. It is well known that dehydration can be a big trigger for those who have Epilepsy, but it can also cause those WITHOUT Epilepsy to have a seizure. So, we are grateful, though on high alert, always. Thank you for your loving prayers!


28 comments:

  1. I think of y'all often and keep you in my thoughts and prayers. Hugs!

    ReplyDelete
    Replies
    1. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage, Our son's seizure is constant throughout the day according to EEG results. We had used several medicine which include: 600 Epitol 100 Zarontin,
      150 Epitec X2 Daily Dopoquel and cilift, Keppra, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can contact Dr.William with this drwilliams098765@gmail.com for advice and his product

      Delete
    2. I am Matthias lang, from Orlando u s a, i suffered from epilepsy for 28 years, i lived in pain with the knowledge that i wasn't going to ever be like every normal human, i contacted so many doctors on this issue,and i have use so many western drugs prescribe by various doctors and all was no avail, because i was determined to get my life back, one day i was researching for this on internet and i saw a post about devansh herbal health care who cure different manners of diseases, including epilepsy, I contacted him via email: devanshherbalheathcare@gmail.com and made purchase of the epilepsy herb, i received the herb through USPS within 24 hours, when i received the herb i applied it as prescribed, and to god be the glory i was totally cured of epilepsy within 1 months of usages,my dear brothers and sisters You do not have to suffer more just contact him for his medicine on devanshherbalheathcare@gmail.com.com he will definitely put an end to that problem of yours

      Delete
  2. Thanks for penning what so many of us feel. I am praying for Renn, your family, and all of the MOEs and beyond. Hugs and love, my friend.

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  3. I can't believe the sensitivity of renn. How mature of him to want to shield and protect his mother.....who does nothing but the same for him always.

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  5. I have no words because you used them all. I wish that this was not happening to any of us, causing us all pain. The fact that Renn knows now and wants to protect you from the worry is truly amazing. Sweet Renn you are a fighter

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  6. I have no words because you used them all. I wish that this was not happening to any of us, causing us all pain. The fact that Renn knows now and wants to protect you from the worry is truly amazing. Sweet Renn you are a fighter

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  7. Renn's courage continues to amaze and inspire me, as does the courage, strength, and faith of your family.

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  8. The words that you write hit to the bone. As I sit here and read them with tears in my eyes for all the Moms Dads brothers sisters everyone who this has touched, I know that we will continue the fight that we have with Epilepsy. We will win because we have the bravest and strongest people fighting against epilepsy. Thank you for putting in words what all of us feel on a daily basis. Much love sent to you and Renn. Now and always.

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    Replies
    1. I had an epileptic fit for the first time 5 years ago in the middle of supermarket on my birthday of all days, wasn't fun for my kids to see it, it still haunts, I've tried many anticonvulsants and had never been able to stop the seizures. Surgery was not an option. I was still an epileptic patient, who have completely lose hope. As the problem is always embarrassing and disturbing. While surfing the internet one fateful day, I learned about Doctor on the internet called Lawson. I contacted him with some info and I ordered for the Herbal medication and used the medication for 6 months, though hesitantly, considering the fact that I have done a lot of procedure. After which I went for medical test It worked! I've been seizure free, Over a year now, I have not show any symptoms of seizure and I believe I am cure if you want to contact him at this email dr.lawson52@gmail.com.+1(936) 657-1274

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  9. We will be praying including my jr church class. One of the boys there asked about Renn about a month ago. He remembered how we prayed before the surgery. Remember even when our faith dwindles to mustard seed size God can still do mighty things. Renn's concern for you speaks of how he has learned compassion from you. We will hold you inprayer

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  10. We will be praying including my jr church class. One of the boys there asked about Renn about a month ago. He remembered how we prayed before the surgery. Remember even when our faith dwindles to mustard seed size God can still do mighty things. Renn's concern for you speaks of how he has learned compassion from you. We will hold you inprayer

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  11. Whoa. Renn is such a great kid. I know you guys are one of the best families I know, and that you guys will make it through this. :)

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  12. THERE IS A PERMANENT CURE TO EPILEPSY: My teenage son started having complex partial and simple partial seizures - he was having many a day. Our son's seizure is constant throughout the day according to EEG results. There are an estimated 60,000 children under 18 with epilepsy here in my state. We had tried all the usual medications on our son- nothing worked. Many of them made them worse. We just discover an herbal medicine that can cure Epilepsy. Our son has been completely cure of Epilepsy after 7months of treatment. The medicine is also cost effective. Don't ever give up his medicine a permanent solution to seizure. For more info Contact the Dr. Joseph on facebook (https://web.facebook.com/Permanent-CURE-to-Epilepsy-646916698795225/?fref=ts) or Email: drjosephbryan@gmail.com

    ReplyDelete
  13. How my son survived epilepsy.
    My son at the age of 13 suffered from terrible seizures as a result of the terrible condition called epilepsy according to EEG results and this was very humiliating and life threatening because he was continuously on life support drugs and medicines but none seemed to cure all they did was revive him and the seizure kept coming to him this lasted for 8 more years. The last time he had seizure in may last year i was called where i worked that my son had a terrible seizure, he was also revived from that but that day i wept. I was fortunate enough to explain my ordeal to a friend who invited Dr. Joseph who came and started treating my son with his medicine at our house for two months and in 3 months the seizure never happened again they were gone and even up till now he is very fine without any epileptic symptoms. Today he is 22 and i believe he has been cured. I think Epilepsy has a cure simply try to reach the doctor on (josephalberteo@gmail.com) for more information about his treatment process or how to get his medicine. Do not give up on yourself, i hope my son's story motivates you.

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  14. I had an epileptic fit for the first time 5 years ago in the middle of supermarket on my birthday of all days, wasn't fun for my kids to see it, it still haunts, I've tried many anticonvulsants and had never been able to stop the seizures. Surgery was not an option. I was still an epileptic patient, who have completely lose hope. As the problem is always embarrassing and disturbing. While surfing the internet one fateful day, I learned about Doctor on the internet called Lawson. I contacted him with some info and I ordered for the Herbal medication and used the medication for 6 months, though hesitantly, considering the fact that I have done a lot of procedure. After which I went for medical test It worked! I've been seizure free, Over a year now, I have not show any symptoms of seizure and I believe I am cure if you want to contact him at this email dr.lawson52@gmail.com.+1(936) 657-1274

    ReplyDelete
  15. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,he do have the attack two to three times a week,which is affecting is education and his life.i got the contact of a doctor from the post of one Mr smith thanking he for curing his seizure problem,i got the contact and contacted him then he made me to know that the medication is a permanent cure, and that was how i got the medication which i used on my son,and for six month now there have been no sign of seizure in him again.any one with such problem can contact him on his email drwilliams098765@gmail.com

    ReplyDelete
  16. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage episode (8 men to hold him down), Our son's seizure is constant throughout the day according to EEG results. We had used several medicine which include: 600 Epilem 100 topolex 150 Epitec X2 Daily Dopoquel and cilift, Keppra, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can contact Dr.William with this drwilliams098765@gmail.com for his product

    ReplyDelete
  17. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William, it does not have any side effect. I am glad to say that he has been seizure-free since July of 2016 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098765@gmail.com)

    ReplyDelete
  18. Epilepsy is a neurological disorder marked by sudden recurrent episodes of sensory disturbance, loss of consciousness, or convulsions, associated with abnormal electrical activity in the brain. My son suffered from this disease for two years. He was constantly having Uncontrollable jerking movements of the arms and legs, Temporary confusion, Loss of consciousness and awareness. He was taking Acetazolamide Diamox 250 mgs bd, 1000mgs daily in divided doses. Carbamazepine (CBZ) Tegretol Regular 100‐200 mgs 1‐2 times daily. Clobazam (CBZ) Frisium 5‐10 mgs daily. Diazepam Valium (DZP) 5‐10mgs daily. Ethosuximide Zarontin (ETH) 250 mgs every 1/52, 2000 mgs daily. But despite taking all this medications, his condition was not still getting better. I and my wife became very worried as my son’s condition was becoming inimical by the day. So this prompted me to start a research online where I stumbled into an article in it I saw so many people talking about herbal doctor Uwadia Amenifo, how they have all positively benefited from his herbal cure. I took solace in their applaud to him and in their write up came the contact details of the herbal doctor. I copied out his contact details, and immediately I put a call across to him, and after explaining my son’s condition to him he gave me hope by saying he have cured so many people of epilepsy and that curing my son for him is as easy as him slashing his fingers. So I was very encouraged and I gave him a YES to go ahead. After all set have be done he prepared the herbs, and shipped it to me. We succinctly followed his instructions on the usage of his herbal product, and behold just as we never anticipate, his herbs worked perfectly well, and cured my son of his epilepsy. This gave me joy and I see reasons to share on this page with all those who, and or have people who is still suffering from epilepsy to in my abrupt recommendation contact Dr Uwadia Amenifo for their immediate cure. Below is a book of his contact details.
    Name: Doctor Uwadia Amenifo
    Email: doctoruwadiaamenifo@gmail.com
    Phone Number: +2349052015874.

    ReplyDelete
  19. WE WELCOME YOU ALL TO DEVANSH HERBAL HEALTH CARE.
    We have Quality Rick Simpson Cannabis oil and medical marijuana for smokers, all types of cancer cure, insomnia,Diabetes,epilepsy,back pain,we also have the herbs that reduces stress and other illness. We are selling our products at very negotiable and workable prices. Apart from our very magnificent prices, when you buy from us, you are assured of the highest quality and purity available in the market,and we are 100% sure of our product, with a guaranteed discreet courier shipping or a special 24 hours confidential overnight delivery of the product to your address. We respect and value your privacy and will dont share your information with anyone. We offer discreet and Reliable packaging and delivery. -Fast and reliable shipment within 24hours within the US and 48 hours internationally, using courier service. Call or Text::::: +1936-2283-155, Email: devanshherbalheathcare@gmail.com for more information

    ReplyDelete
  20. Hello viewers all over the world am Jacky scob, I want to testify of what Dr Lewis hill did for me. i was having a very notorious and serious sickness called seizure and i was very in lost of hope i never believed i was going to be cured until i meant these great man called Lewis hill who God sent to help me cure my sickness . just a few moment with these great man he cured my infection His herbal remedy is the only permanent solution to Seizure. i want you to know that all hope is not lost until every thing is done if you also have these following infections contact his email drlewishill247@gmail.com

    ReplyDelete
  21. I am Matthias lang, from Orlando u s a, i suffered from epilepsy for 28 years, i lived in pain with the knowledge that i wasn't going to ever be like every normal human, i contacted so many doctors on this issue,and i have use so many western drugs prescribe by various doctors and all was no avail, because i was determined to get my life back, one day i was researching for this on internet and i saw a post about devansh herbal health care who cure different manners of diseases, including epilepsy, I contacted him via email: devanshherbalheathcare@gmail.com and made purchase of the epilepsy herb, i received the herb through USPS within 24 hours, when i received the herb i applied it as prescribed, and to god be the glory i was totally cured of epilepsy within 1 months of usages,my dear brothers and sisters You do not have to suffer more just contact him for his medicine on devanshherbalheathcare@gmail.com.com he will definitely put an end to that problem of yours

    ReplyDelete
  22. My son recently started having grand Mal seizures at 16 years old. We were prescribed Kepler. We decided NOT to take the medicine and go with a Modified Atkins Diet that entails feeding our son 15 carbs a day with lots of healthy fat. He eats a lot of grass fed beef, free range eggs, organic low crab veggies and is doing fantastic! We could tell a difference in him by the 3rd day. This is not alternative or junk science. Dr. Lewis hill at Johns Hopkins has been championing this diet for years and has been really successful. Doctors are really resistant to this therapy but it works!. Read "Grain Brain" for why it works. He also takes taurine which helped stop the night time teeth grinding, jerking, and unrest in his sleep (also known to stop seizures). And he takes cur cumin as a brain protestant that raises seizures.one day came across Albert post thanking Dr Lewis hill for curing his son seizure problem, and i got the contact of Dr Lewis hill i quickly contacted him then he made me to know that the medication is 100% permanent cure, and that was how i got the medicine which i used for my son, after which i took my son for medical test It worked! Over a year now, my son have not show any symptoms of seizure and I believe my son is cure if you need his help email him on drlewishill247@gmail.com

    ReplyDelete
  23. I had my first seizure. I was in high school and didn't want anyone to know that I had epilepsy. I had seizures on two occasions. I was so ashamed and didn't want people to think that something was wrong with me. I finally got to the point where I told people that I had epilepsy. I came to the place that I realized that I had to own my epilepsy or it would control me. Epilepsy hadn't really affected my life until about 9 years ago after my first child was born... I am a wife and mother of two beautiful children. I have lived with epilepsy for 20 years Yet, my life has been dramatically impacted by epilepsy. I had search for cure online without no hope. I met a Man called DR Lewis hill, i contact him I made an order of his medicine and I do not experience seizure anymore i was cured form it. So if you are in the same situation as mine contact him on this email drlewishill247@gmail.com

    ReplyDelete
  24. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,he do have the attack two to three times a week,which is affecting is education and his life.i got the contact of a doctor from the post of one Mr paul thanking he for curing his seizure problem,i got the contact and contacted him then he made me to know that the medication is a permanent cure, and that was how i got the medication which i used on my son,and for six month now there have been no sign of seizure in him again.any one with such problem can contact him on his email drwilliams098765@gmail.com

    ReplyDelete
  25. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage, Our son's seizure is constant throughout the day according to EEG results. We had used several medicine which include: 600 Epitol 100 Zarontin,
    150 Epitec X2 Daily, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can also contact Dr.William with this email drwilliams098765@gmail.com for advice and his product

    ReplyDelete