Saturday, November 2, 2013

Grid Placement: Day 6

Zzzzz... Zzzzz... Zzzz...

Oh! *ahem*, I didn't see you there. Pardon me... I stayed up entirely too late last night. But, I'm glad I did. I witnessed Renn have a SEIZURE!!! Now, before we get too excited, it was in his sleep. As I've said before, the doctors are looking for his "typical" seizures. But from the seizure last night, it looks as if we really are going after the Temporal lobe. Remember all that language mapping? They found his language skills to be stemming from the Frontal lobe... SO, if Dr. Genius was correct all along, Renn's speech won't disappear after the surgery! We're still praying... We need "typical" seizures.

Our Jedi had another good, albeit seizureless, day. He was alert, laughing, happy.

And then, the IV in his foot started hurting. His nurse decided it was time we talk about getting
a PICC line... I decided that even though he'd need to get "poked" again, it would be for the last time. We could do his blood draws (which are being done daily) and give him all his antibiotics from ONE place... So, we went ahead with it.

The dude was a champ. His nurse tried to give him Dilaudid (the synthetic form of Morphine- which is what he was given coming straight out of surgery) BEFORE the PICC line was placed to "calm him down". I get it, some kiddos need to be sedated. But when you're trying to encourage seizure activity, sedating the child makes no sense, especially when that child is mine. Give that boy an iPad, and he'll do just fine! I straight out argued with the nurse about it, won, and was proven right. Our brave Jedi barely even flinched as he played Angry Birds on the iPad.

Score #2 for Momma.

Renn also had some VISITORS, today!!

That's right, all the way from Southern California, his Aunt, Uncle, and three cousins came to spend some time with him here. And for them to drive over seven hours to be with us? Wow... We will be getting to see them tomorrow, too. We are blessed, and beyond lucky to have some family who love us.

Eli is also lucky, because he is GLUED to his younger cousin, so playing today was the most fantastic reward to a week of support well done.

We do have some not-so-fun news, of sorts.  Apparently, Renn's red blood cell count is a bit low. Declining, in fact. And the iron within the ones he has, is low as well. He may get a bit of a transfusion tomorrow, or just before surgery, or not at all. 

It's not the antibiotic causing this issue (though it's looking like the Vancomycin count is actually TOO low, so we may need to increase dose a bit). But it is either due to what he lost during the first surgery, or due to diet. Either way, they aren't super concerned. But they are keeping an eye on it. Luckily, the hubs donated a few weeks ago for this very reason... At least we were prepared.
Happy daylight savings time! So, technically I'm not staying up waaay too late again... It's only 10:45pm!!

God be with all of you... Thank you for your continued prayers.
"Wait for the Lord; be strong, and let your heart take courage; wait for the Lord!"
Psalm 27:14


  1. I am in awe of the little dude's courage. He is the bravest person I have ever heard of. <3

  2. I will pray for you and Renn and your family. Great news about the lobe! :D

  3. Keeping you all in my thoughts and prayers.