As soon as we got here, he surrounded himself with the oodles of Star Wars trinkets that loved ones have both bestowed on AND made for him, and he sat quite comfortably while he playing various games.
But eventually, the hard work had to begin...
He took to it like a true Jedi warrior, I tell ya. He breezed through getting the electrodes put onto his head, and knew the whole process by heart. He only got irritated when he had to close his eyes for part of it (probably because it meant he was going to "mess up" his game!).
After we signed our lives away and began to get comfortable, Renn had a seizure... Hallelujah!! It wasn't huge, but we caught it, baby! And I'm not going to lie... I did a happy dance.
Finally, it was time for Daddy and E to leave... That part wasn't fun.
After a while, we had sooooo many people come in and ask all the same questions (this is a research hospital, after all! I met quite a few medical students, residents, etc. I just pretended I was on an episode of Scrubs!), but when we finally saw Dr. Amazing, she informed me that she has no serious plans for Renn at the moment.
I was kind of confused. But what she meant was that she really wanted to capture some serious seizure activity to base her opinions on, before deciding how long we'd stay. I got the feeling that we won't be here longer than a week (yaaay!!). And, while that's a great thing, I think that means that we won't be getting the one-stop-shop testing done as we'd hoped for. Living so far away, we'd prefer to get it all done at once.
Then, as we turned down the lights for bed...
Renn. Broke. Down.
He began to beg, to plead, and to sob, "I just want these off my head! Why are you doing this to me?? Stop torturing me! I hate this, Mommy! I hate it, I hate it! I want to go home!!!"
Mommy wanted to grab him and run.
I know he's not angry at me, really. I know better than to take it personally. But, put yourself in my shoes, and tell me your heart doesn't ache.
I think I'm now okay with not having a one-stop-shop testing situation on our hands. I can't even hold him, as he lies in that hospital bed. That camera is just as fixated on him as I am, and as he sleeps peacefully, I am praying. Constantly praying. And I am forever grateful for the verse God gave me on Sunday...
"It is not for you to know times or seasons that the Father has fixed by His own authority..."
Day one of this mission is now behind us. May day two bring the biggest and best answers imaginable.
Sweet dreams, Jedi...